We have had a very busy week. I truly do mean to post almost everyday but sometimes my intentions are better than my time management. Twins. What more can I say.

So lets see… We left off with our trip to the ER last weekend, it’s becoming a weekend habit for our little girl, we are going to have to nip it in the bud really quick. Too much stress for her Mommy, but we’ll get to that later.

After our little trip to the ER last weekend we had a very good week, health wise. We spent the early part of the week at home keeping busy accomplishing not much more than laundry. On Wednesday, we had a PT/OT appointment. We saw our regular PT (Shelley), our OT (Laura) is still on summer holidays. I love going to these appointments. These ladies are amazing. They see improvements that I don’t really notice until we’re there and they always make me feel good about the girl’s development (though it is defiantly behind). They are always so positive. I swear they have extra arms too… they can always hold the girls in a certain position with all limbs supported and still hold a toy for them to play with. Anyways…

Shelley had not seen the girls for about 4 weeks because she had been on holidays. Boy was she impressed. Especially with Miss Lena. Lena’s head support/control has improved dramatically in the last month. Even I noticed that. She still can’t turn her head side to side when she is flat on her back though, which is causing a head shape issue. Shelley also said that Lena’s tone is her legs seems to have improved and she’s not clenching her left hand as much as she used too. (I noticed this immediately after surgery).  She is also tracking with her eyes much better too. Tummy time is still an issue, but we are getting better.

Shelley thinks Kassie is the greatest. Everyone does really. She is always happy and smiling, her huge smile just warms your heart. She is a ham. Shelley says that Kassie is going to be ready to sit all by herself soon. Neglectant Mommy had not noticed how well she had been sitting supported. All she needs is a tiny little bit of pressure on her back so she doesn’t fall over to the right. Yeah! a huge milestone. Now we just have to work on Lena. Then we can have tea parties.

Lena really like to be in the sitting position because then she can control her head better, so I think as soon as she gains more control of her head we will have two sitting super stars.

Shelley really made me fell better about our gross motor development on Wednesday. The girls still can not roll over, front to back or back to front. She said she doesn’t care if they do or when they do. Sitting and standing are much more important and the rolling thing will come as they gain more upper-body strength from doing all of these other things. What a relief I kinda thought since rolling was the first milestone” that we needed to accomplish that first. I was beginning to think we were going to be stuck in this rut for a long time.

At the end of our appointment we discussed Lena’s head shape and whether we thought is is delaying her development. I think is really is and Shelley tends to agree with me. We have been trying to different positional things but Lena just won’t tolerate them long enough to make a difference and we are running out of soft bone time. So we are headed to the “head shape clinic” in Edmonton Alberta for an assessment later this week. Lucky us, we might get to wear a very expensive fiberglass hat for awhile. There is no clinic like this in Saskatchewan because our government has deemed it purely cosmetic and does not cover any of the costs. So if we decide to go ahead (which we probably will because I think the girls should have every opportunity to excel) we are stuck with the $1000+ bill for the hat and all travel and accommodation costs. Did I mention we will have to make the 5.5 hour drive very 2-3 weeks? The good news is that due to Lena’s CP diagnosis, she is covered under special government programming and since her CP is a contributing factor, not just cosmetics, I may be able to convince them to pay for the hat, we will have to apply to local charities for funding for all of the travel.

So I came home and got an appoinment at the clinic for Monday (today). The whole family was going to come and make mini vacation out of the trip since our real vacation had to be cancelled due to brain surgery.  The rest of the week was spent tidying the house, doing odd jobs, making sure Kassie ear infection had cleared up and finally finishing the porch construction that Wayne started at the beginning of summer (its beautiful by the way, he did a great job).

We were all set to leave early Monday morning, until Lena decided to make another trip to the ER on Sunday…