Yesterday was not such a good day. I have to say I am seriously discouraged, everything was going so well and she has been herself for days.Yesterday when she woke, I expected some irritability and lethargy. After all she did have surgery last night. She usually recovers so quickly I kind of expected her to mostly be herself.

In the morning she was not bad, a little grumpy but overall pretty good. She ate and napped and was good. When the residents came by she was napping. Shortly after the neurosurgeon came by, she awoke when he was here, she smiled and visited with him while he was here. She was doing so well that we were allowed to go home on a pass for the afternoon. We left the hospital at almost noon and went home.

Lena had a nap on the way home and woke shortly after arriving. I took her out of her car seat and let her play in her rocker. She was fussing so I fed her, then she played some more and started fussing again, she made a gurgling noise and threw up. Not spit up, threw up. Being that this can be a sign of shunt failure and that she got lethargic afterward, another sign, we high tailed it back to the hospital before our leave was over. No clean laundry or a shower for Mommy.

When we got back to the hospital she was responsive and crying when I took her out of her car seat. A good sign. The neurosurg resident checked her over and had us go down stairs for another CT scan. Cripes we see the inside of that room too much. The good news, there was no change in pressure since the day before, ostomy still working. Diagnosis, not feeling well after anesthesia. After the scan she went to sleep and had a nap. When she woke she was irritable again, this time worse than before. I fed her and snuggled her. She ate a little and fell asleep again. When she woke she ate well but was fussy and whining. She sounded like she was in pain so I asked the nurse for something for pain, hoping that it was just the surgical wound.  While I comforted her she threw up on me again. The nurse took her vital signs, all good and called the resident again at my request. She was with someone else and would come asap. While we were waiting for her she threw up again, this time she required some oxygen to recover. By now I was (and still am) very worried.

The resident came and listened to my concerns that her discomfort had to do with her head. She seemed to want to believe that they were not because the CT had only been hours before and that there was no change. I told her that when we were in the ER two+ weeks ago there was very little change as well but we had an infection and major increase in pressure. She called the surgeon at home and he decided to open her EVD for 15 minutes to alleviate pressure and see what happens over night. When she opened it fluid shot out, so there was definitely a build up of pressure. Not much drained out though, so that was good. Also good was the color of the fluid it looks much more normal than it did a few days ago. Once she went back to sleep I went for a walk up to the hospital chapel and prayed really hard that this is NOT a major set back. 

For now, we will try to get some rest and regroup and discuss what all this means.