Jul 26 2007
Guest Book
Through our blog we have developed some online friendships, and have gained and given a lot of support and encouragement to others out there who are on the preemie journey along with us. Keeping this journal of my girls’ progress and development, and sharing my feelings, through the good times and the hard times, is extremely therapeutic for me.
I am creating this post as a guestbook, and will link to it in the side panel, so as we get new visitors they can sign in too. So please, please, tell me who you are! Everyone! How are you connected to us? How did you find us? Why do you read? Where are you from? Are you just passing through, or have you been along for the ride? Do you plan on staying with us on our journey?
My hope is to someday share your comments with Lena and Kassie, so they will know what an inspiration their story is to all of us, and they will know how much they are loved!
Feel free to just leave your name if you’re feeling a bit shy and don’t want to leave a long post. Of course, I love the lengthy comments, but I really want everyone to participate, so even just a name would be fine! I know you are out there:)
22 Responses to “Guest Book”
Hi, I found your blog through another preemie blog. I have two sons 14 months apart. My oldest was born at 28 weeks. After his NICU stay he came home on oxygen and had severe relux. He is now 18 months actual and doing great. He has some developmental delays but is perfect in my eyes. Just like your two beautiful girls. My youngest son is 4 months and after spending the entire third trimester in bed was born full term. I work part-time and I am a nursing student. I think we have alot in common and I love to hear stories of the girls.
Shannon
Hi, I’m a fellow member of PBM(preemie blog moms). I thought that I’d check out your beautiful girls. My own daughter was born at 23w4d in June of 2006. I think that this blog that you’re creating for them will be a beautiful gift that they will treasure forever. Keep up the great work.
Cora (mama to Amelia)
Hi! I love your site I had preemie boy girl twins at 25weeks 2 days. They were born 1-8-07. It has been a long, hard, road but we are still here. We had a 115 day stay in the NICU. Your site inspires me. We are doing good thus far. I love your information board. I never knew there were so many 3 letter abbreviations! Thoughts and prayers are with you. Feel free to email me.
Hi Girls, This is your honorary Aunt Patti,
I heard about you thru your Aunt Linda. My daughter Kelly is one of a set to twin Preemie Girls. After going thru infertility treatments with not much hope for success. We were blessed with a twin pregnancy.Kelly was born at 31 weeks just a little over 21 years ago. Her sister Kristi is not with us as she died when she was 7 weeks old from mennigitis. She is dearly missed. Kelly has had many struggles to go thru but is turning into a beautiful talented women right before my eyes. Kelly follows how you, her “Baby Owls” are doing regularly. She feels a definate connection with you because of the “Twin Thing”. She is just starting a web site and has decided to adopt you and dedicated a section on this site to you girls. We both know how it is to have to struggle to learn to do things. Everyone of your milestones is celebrated at our house. We have been there and want you to know that nothing is impossible. You may have to work just a little harder to accomplish things but the world is yours to do anything and everthing you might want to. Follow your dreams little ones.
We know you guys through the Preemie Blog Moms! I am Abby, Hallie Rose and Olivia Skye’s mom—the first here on earth and our second an angel baby. They were born in June 2006 at 23 weeks 4 days. Before that, I knew very little about preemie motherhood and even less about being a micropreemie mom. Now that’s the most salient part of my identity.
Your girls are beautiful and we look forward to following their progress!
I found your site through some searches on preemies with grade IV bleeds. My son was born at 26 weeks and suffered a grade IV and II bleed and I also told that IF my son survived he would have severe disabilities. As of today he is almost 6 months old (2.5 adjusted) and doing great. Thank you for sharing your story with us!
I found your blog through some really hard searching, I asked someone else to e-mail me the URL but you how busy she can be at any given time, even to the point where I have had to answer the telephone a few times recently.
I love all the pictures of the girls and all the posts that everyone has left, it shows the level of love and care that exists for you, the girls and the family.
I am sure that everything will work out for the best, I know that things can seem tougher than they really might be, but look at the poor caterpillar, just when he thinks his live is at its end, it emerges from its cocoon as a beautiful butterfly .
Even though we are miles apart, you and girls are a daily part of our lives and the stories of them brings a smile to my face, every time.
Be strong for you and your little angels, you have a world of support.
Hello,
You have two beautiful baby girls! I am mom to AJ (he’ll turn 3 yrs old later this month), a micro preemie, born at 26 weeks (1 lb 8 oz). It has definitely been a long road (to say the least). It’s a lot of work, a lot of appointments, and definitely a lot of waiting! I wish you the best with your babies. May GOD rain his blessing upon all of us.
Hi! My name is DeAnna and I have 2 handsome baby boys that were born at 28 weeks 3 days on 05/31/07. Jack was 2lbs 8oz and Jake was 2lbs 3oz. They are doing great and I just love that I found your website. You are an inspiration to all mothers. I can’t believe how you find the time to write but I am very very grateful to you and your family. I will definitely follow the progression of your darling girls! I wish you the best and thank-you in advance for helping us all with your insight and great detail you provide. I would love to keep in touch with you and learn more. I’m sending all my positive thoughts and prayers your way. Once again thanks!
Nevaeh and I are thinking about you and our thoughts and prayers are with all of you!
God Bless
Your girls are beautiful! I found you thru Billie and I will keep you in my thoughts and prayers.
Hello~
What a wonderful site. I wish I had found something like this almost three years ago.
I was a preemie twin born almost 31 years ago. The medical field is amazing!! We were born at 28 weeks. I was 2lb 4oz, my brother was 3 lbs, and we lost him at birth.
Three years ago on 11/16/04. I very unexpectedly had our daughter at 32 weeks weighing in at 3 lb 15oz. We had only 18 day, very few compare to most of you, but hellish just the same.
We brought her home on O2 for two months. It has been a long road but today we have a wonderful three year old. She is such a fighter! She is in great health except for some asthma so I feel so blessed.
I wish you and your BEAUTIFUL daughter all the best. Thank you for putting your story here to support and share with us.
Julia
I am so happy you have a site like this. I found your story on the March of Dimes site last year and I have been following it as close as I can. I also live in Saskatchewan and I also had a preemie. He was born at 29 weeks and was 2lbs 3oz. We spent 45 days in the hospital and came home with nothing but a miracle. Thank you for your stories and my thoughts and prayers are always with you and your family.
You know my story. I’m always here for you, and Lena and Kassie, and the rest of the gang for that matter. Lena and Kassie are strong in spirit and demonstrate their tenacity and love of life each and every day! I cherish every moment that I get to spend with them. Thanks for asking me to be a part of their lives. Hugs!
Hi there! I found your blog doing a search on micropreemies. My sister-in-law had twin girls very recently, born just under 24 weeks. Reading your blog has certainly given me some hope. I plan to pass on the URL to her so she can read it. Are there any books you read that you would recommend? She really wants to be well informed, but I don’t want to get her book that will scare her with all the what-ifs. I also think a book that deals with the emotional aspect would be beneficial. Continued good luck to you and your girls!
I think your blog is great and wish Royal University Hospital or Mandra had given me this sooner, I could have your the definitions when my daughter was born. She was born July 2007 at full 25 weeks, 1 lbs 5 oz (613 g, thats with resusitation fluids, real wieght figured closer to 1 lbs 2 oz). She was intubated for 4 months, and CPAP for two weeks, then went home on oxygen. We were forunate of no brain bleeds or laser eye surgery, although that was touch and go. I look forward to hearing and sharing more stories.
Hi,
Your girls are so cute. What an awesome site. I belong to the hydro group and read your story there. I have a son with Hydrocephalus and CP. He is 21 and is a joy. We have been through 1 blocked tubing, 1 disconnection and 1 new shunt in 92 when he had a staff infection. We consider ourselves very lucky to have a wonder Neuro surgeon. If you ever have any questions about what we have gone through ask away. I don’t have a web site but we do have a my space. feel free to check us out. http://www.myspace.com/SueGundlach
Hi,
What beautiful girls. I found your site because I get Google alerts for Latex Allergy, from which I suffer (anaphylaxis). It picked up your blog entry. I was very interested to read your story. So sorry for butting in, and for raising something when you might not need it, but I was really interested to read about the vomiting. Although I am sure you are right - it is pretty certain this was a virus, would you mind my mentioning that it is always worth checking for celiac disease? Mine was not detected until I was 51 and had been ill all my life. The gastroenterologist I flew to see (my doctors here were terrible) said my latex allergy was connected to my intolerance to other proteins and sugars, too. As I say, forgive the intrusion. But I have latex food intolerances, too, so understand the peaches thing. And when I read your little girl could cope with rice, it reminded me of the celiac business. (BTW bananas are one of the foods I was told to avoid because of the latex allergy. I used to love their taste but find that they made me feel really ill. I wonder if medical opinion has changed on that?) I send you many good wishes. Good luck with everything and congratulations on your lovely children.
Hi! We had twin boys 2 weeks ago at 25 weeks and 6 days. We are just beginning our journey in the NICU. Both boys have brain hemorrages. One is level III and the other is level IV. Your post is encourgaging to me - Thank you!
Hi,
I bumped into your site through Billie’s blog,& found it awesome! You are doing a great job creating memories for Yourself & your little girls, as well as, reaching & supporting out countless others at the same time. God Bless you & your little Girls! As for me, I have preemie born at 30 w & 3 days,due to IUGR she was born 2.5 lbs. After about 3 days in the NICU, we were told she had a Grade IV bleed on 1 side. Being parents to a healthy full trem 5 yr old boy, we were shattered when came to know the Prognosis. As if that was not enough , after 2 weeks we were told she developed Hydrocephalus, & would most likely require a shunt. On 35 w geatstion, she had a ETV(endoscopic third ventriculostomy). We were told that only about 40% of babies of her gestational age has a successful ETV. Rest all has to go back for a shunt. But we insisted, knowing the risks of a shunt we would have taken even a 1% chance w/ ETV. By pure God’s grace, she had a successful surgery. She was otherwise doing fine, no Cpap, or Vent , after the 1st 24 hrs of her birth. Only nasal canula for a couple of days after surgery. She did have rop stage I , but that resolved after 2 weeks. So when she came home, after 40 days of NICU stay, she was a bundle of pure joy & a miracle baby for us.
She had her 1 month post surgery neuro check up , so far everything is fine.(her neurosurgeon thinks she will never need a shunt)She has her 3 month check up next month w/ MRI. Our fingers are crossed. But at our hearts we know, she is fine & she will do just fine. She gets her Early intervention therapies at home, but it’s more of a once-a-month follow up, to monitor her. She is 3.5 months adjusted & right on track developmentally!We couldn’t be happier for her!
Sorry to ramble on for so long, But just wanted you to know I read your Blog & get inspired by you & your girls every time. keep up the great work!
HI! Saw your link to your website from the preemie support group site. My b/g twins are 26 weekers and are 21 mo now. My daughter has CP. We are navigating the therapies and all ok. your girls are beautiful! Good luck!
Hey there! I have been following your page for quite some time now. Just wanted to say I couldn’t be more proud of you, your family and especially Lena and Cassie. You are all doing an amazing job. We will have to get together sometime soon. Hope all is well and take care!! Thank you!