Jul 26 2007


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36 responses so far


  1. Shannonon 26 Jul 2007 at 11:12 am

    Hi, I found your blog through another preemie blog. I have two sons 14 months apart. My oldest was born at 28 weeks. After his NICU stay he came home on oxygen and had severe relux. He is now 18 months actual and doing great. He has some developmental delays but is perfect in my eyes. Just like your two beautiful girls. My youngest son is 4 months and after spending the entire third trimester in bed was born full term. I work part-time and I am a nursing student. I think we have alot in common and I love to hear stories of the girls.

  2. Coraon 26 Jul 2007 at 1:14 pm

    Hi, I’m a fellow member of PBM(preemie blog moms). I thought that I’d check out your beautiful girls. My own daughter was born at 23w4d in June of 2006. I think that this blog that you’re creating for them will be a beautiful gift that they will treasure forever. Keep up the great work.
    Cora (mama to Amelia)

  3. Jenniferon 27 Jul 2007 at 11:29 am

    Hi! I love your site I had preemie boy girl twins at 25weeks 2 days. They were born 1-8-07. It has been a long, hard, road but we are still here. We had a 115 day stay in the NICU. Your site inspires me. We are doing good thus far. I love your information board. I never knew there were so many 3 letter abbreviations! Thoughts and prayers are with you. Feel free to email me.

  4. Pattion 29 Jul 2007 at 1:47 am

    Hi Girls, This is your honorary Aunt Patti,
    I heard about you thru your Aunt Linda. My daughter Kelly is one of a set to twin Preemie Girls. After going thru infertility treatments with not much hope for success. We were blessed with a twin pregnancy.Kelly was born at 31 weeks just a little over 21 years ago. Her sister Kristi is not with us as she died when she was 7 weeks old from mennigitis. She is dearly missed. Kelly has had many struggles to go thru but is turning into a beautiful talented women right before my eyes. Kelly follows how you, her “Baby Owls” are doing regularly. She feels a definate connection with you because of the “Twin Thing”. She is just starting a web site and has decided to adopt you and dedicated a section on this site to you girls. We both know how it is to have to struggle to learn to do things. Everyone of your milestones is celebrated at our house. We have been there and want you to know that nothing is impossible. You may have to work just a little harder to accomplish things but the world is yours to do anything and everthing you might want to. Follow your dreams little ones.

  5. Abby Schraderon 31 Jul 2007 at 6:35 pm

    We know you guys through the Preemie Blog Moms! I am Abby, Hallie Rose and Olivia Skye’s mom—the first here on earth and our second an angel baby. They were born in June 2006 at 23 weeks 4 days. Before that, I knew very little about preemie motherhood and even less about being a micropreemie mom. Now that’s the most salient part of my identity.

    Your girls are beautiful and we look forward to following their progress!

  6. Nicoleon 01 Aug 2007 at 10:48 am

    I found your site through some searches on preemies with grade IV bleeds. My son was born at 26 weeks and suffered a grade IV and II bleed and I also told that IF my son survived he would have severe disabilities. As of today he is almost 6 months old (2.5 adjusted) and doing great. Thank you for sharing your story with us!

  7. PeterGon 02 Aug 2007 at 8:38 pm

    I found your blog through some really hard searching, I asked someone else to e-mail me the URL but you how busy she can be at any given time, even to the point where I have had to answer the telephone a few times recently.

    I love all the pictures of the girls and all the posts that everyone has left, it shows the level of love and care that exists for you, the girls and the family.

    I am sure that everything will work out for the best, I know that things can seem tougher than they really might be, but look at the poor caterpillar, just when he thinks his live is at its end, it emerges from its cocoon as a beautiful butterfly .

    Even though we are miles apart, you and girls are a daily part of our lives and the stories of them brings a smile to my face, every time.

    Be strong for you and your little angels, you have a world of support.

  8. Shondaon 05 Sep 2007 at 7:53 am


    You have two beautiful baby girls! I am mom to AJ (he’ll turn 3 yrs old later this month), a micro preemie, born at 26 weeks (1 lb 8 oz). It has definitely been a long road (to say the least). It’s a lot of work, a lot of appointments, and definitely a lot of waiting! I wish you the best with your babies. May GOD rain his blessing upon all of us.

  9. DeAnnaon 07 Sep 2007 at 9:43 am

    Hi! My name is DeAnna and I have 2 handsome baby boys that were born at 28 weeks 3 days on 05/31/07. Jack was 2lbs 8oz and Jake was 2lbs 3oz. They are doing great and I just love that I found your website. You are an inspiration to all mothers. I can’t believe how you find the time to write but I am very very grateful to you and your family. I will definitely follow the progression of your darling girls! I wish you the best and thank-you in advance for helping us all with your insight and great detail you provide. I would love to keep in touch with you and learn more. I’m sending all my positive thoughts and prayers your way. Once again thanks!

  10. Leanne Kulbidaon 17 Sep 2007 at 11:23 am

    Nevaeh and I are thinking about you and our thoughts and prayers are with all of you!
    God Bless

  11. Laurelon 28 Sep 2007 at 9:43 pm

    Your girls are beautiful! I found you thru Billie and I will keep you in my thoughts and prayers.

  12. Juliaon 23 Oct 2007 at 7:41 pm


    What a wonderful site. I wish I had found something like this almost three years ago.

    I was a preemie twin born almost 31 years ago. The medical field is amazing!! We were born at 28 weeks. I was 2lb 4oz, my brother was 3 lbs, and we lost him at birth.

    Three years ago on 11/16/04. I very unexpectedly had our daughter at 32 weeks weighing in at 3 lb 15oz. We had only 18 day, very few compare to most of you, but hellish just the same.

    We brought her home on O2 for two months. It has been a long road but today we have a wonderful three year old. She is such a fighter! She is in great health except for some asthma so I feel so blessed.

    I wish you and your BEAUTIFUL daughter all the best. Thank you for putting your story here to support and share with us.


  13. Melissaon 06 Nov 2007 at 10:16 am

    I am so happy you have a site like this. I found your story on the March of Dimes site last year and I have been following it as close as I can. I also live in Saskatchewan and I also had a preemie. He was born at 29 weeks and was 2lbs 3oz. We spent 45 days in the hospital and came home with nothing but a miracle. Thank you for your stories and my thoughts and prayers are always with you and your family.

  14. Leahon 15 Jan 2008 at 11:17 pm

    You know my story. I’m always here for you, and Lena and Kassie, and the rest of the gang for that matter. Lena and Kassie are strong in spirit and demonstrate their tenacity and love of life each and every day! I cherish every moment that I get to spend with them. Thanks for asking me to be a part of their lives. Hugs!

  15. Amyon 21 Jan 2008 at 10:36 am

    Hi there! I found your blog doing a search on micropreemies. My sister-in-law had twin girls very recently, born just under 24 weeks. Reading your blog has certainly given me some hope. I plan to pass on the URL to her so she can read it. Are there any books you read that you would recommend? She really wants to be well informed, but I don’t want to get her book that will scare her with all the what-ifs. I also think a book that deals with the emotional aspect would be beneficial. Continued good luck to you and your girls!

  16. Nicoleon 31 Jan 2008 at 9:34 pm

    I think your blog is great and wish Royal University Hospital or Mandra had given me this sooner, I could have your the definitions when my daughter was born. She was born July 2007 at full 25 weeks, 1 lbs 5 oz (613 g, thats with resusitation fluids, real wieght figured closer to 1 lbs 2 oz). She was intubated for 4 months, and CPAP for two weeks, then went home on oxygen. We were forunate of no brain bleeds or laser eye surgery, although that was touch and go. I look forward to hearing and sharing more stories.

  17. Sueon 09 Apr 2008 at 7:05 pm

    Your girls are so cute. What an awesome site. I belong to the hydro group and read your story there. I have a son with Hydrocephalus and CP. He is 21 and is a joy. We have been through 1 blocked tubing, 1 disconnection and 1 new shunt in 92 when he had a staff infection. We consider ourselves very lucky to have a wonder Neuro surgeon. If you ever have any questions about what we have gone through ask away. I don’t have a web site but we do have a my space. feel free to check us out. http://www.myspace.com/SueGundlach

  18. Alion 25 Apr 2008 at 11:06 pm


    What beautiful girls. I found your site because I get Google alerts for Latex Allergy, from which I suffer (anaphylaxis). It picked up your blog entry. I was very interested to read your story. So sorry for butting in, and for raising something when you might not need it, but I was really interested to read about the vomiting. Although I am sure you are right – it is pretty certain this was a virus, would you mind my mentioning that it is always worth checking for celiac disease? Mine was not detected until I was 51 and had been ill all my life. The gastroenterologist I flew to see (my doctors here were terrible) said my latex allergy was connected to my intolerance to other proteins and sugars, too. As I say, forgive the intrusion. But I have latex food intolerances, too, so understand the peaches thing. And when I read your little girl could cope with rice, it reminded me of the celiac business. (BTW bananas are one of the foods I was told to avoid because of the latex allergy. I used to love their taste but find that they made me feel really ill. I wonder if medical opinion has changed on that?) I send you many good wishes. Good luck with everything and congratulations on your lovely children.

  19. Mary Cheairson 10 Jul 2008 at 8:50 pm

    Hi! We had twin boys 2 weeks ago at 25 weeks and 6 days. We are just beginning our journey in the NICU. Both boys have brain hemorrages. One is level III and the other is level IV. Your post is encourgaging to me – Thank you!

  20. Piyalion 26 Jul 2008 at 10:14 am

    I bumped into your site through Billie’s blog,& found it awesome! You are doing a great job creating memories for Yourself & your little girls, as well as, reaching & supporting out countless others at the same time. God Bless you & your little Girls! As for me, I have preemie born at 30 w & 3 days,due to IUGR she was born 2.5 lbs. After about 3 days in the NICU, we were told she had a Grade IV bleed on 1 side. Being parents to a healthy full trem 5 yr old boy, we were shattered when came to know the Prognosis. As if that was not enough , after 2 weeks we were told she developed Hydrocephalus, & would most likely require a shunt. On 35 w geatstion, she had a ETV(endoscopic third ventriculostomy). We were told that only about 40% of babies of her gestational age has a successful ETV. Rest all has to go back for a shunt. But we insisted, knowing the risks of a shunt we would have taken even a 1% chance w/ ETV. By pure God’s grace, she had a successful surgery. She was otherwise doing fine, no Cpap, or Vent , after the 1st 24 hrs of her birth. Only nasal canula for a couple of days after surgery. She did have rop stage I , but that resolved after 2 weeks. So when she came home, after 40 days of NICU stay, she was a bundle of pure joy & a miracle baby for us.
    She had her 1 month post surgery neuro check up , so far everything is fine.(her neurosurgeon thinks she will never need a shunt)She has her 3 month check up next month w/ MRI. Our fingers are crossed. But at our hearts we know, she is fine & she will do just fine. She gets her Early intervention therapies at home, but it’s more of a once-a-month follow up, to monitor her. She is 3.5 months adjusted & right on track developmentally!We couldn’t be happier for her!
    Sorry to ramble on for so long, But just wanted you to know I read your Blog & get inspired by you & your girls every time. keep up the great work!

  21. Andreaon 28 Jul 2008 at 6:32 am

    HI! Saw your link to your website from the preemie support group site. My b/g twins are 26 weekers and are 21 mo now. My daughter has CP. We are navigating the therapies and all ok. your girls are beautiful! Good luck!

  22. Jodyon 29 Jul 2008 at 10:53 am

    Hey there! I have been following your page for quite some time now. Just wanted to say I couldn’t be more proud of you, your family and especially Lena and Cassie. You are all doing an amazing job. We will have to get together sometime soon. Hope all is well and take care!! Thank you!

  23. Melissaon 26 Aug 2008 at 2:38 pm

    Hi there! I am so happy that I stunbled upon this website, it has just been within the hour that I found it and I have already started gaining a little more hope. My baby girls are three weeks old today; they were born at 28 weeks and 4 days gestation weighing 2lb 10oz and 1lb 11oz. Both of my girls have been diagnosed with IVH; one is much worse than the other at a grade 3 with increasing Hydrocephalus. At this moment in time I am terrified as I am awaiting a consult with a neuro surgeon to discuss the plan of tapping fluid off of her brain. It all happens so fast. One day you think things are really looking up, and then you get a phone call or a Dr. approaching you, and you know they have something not so good to tell you just by the look in their eye. This is a scarey road, and I know we are going to be on this road for a while longer because they are only 31 (weeks corrected). Thank you so much for having a website like this. I will continue to be on it daily I am sure. Thanks for the glimmers of hope!

  24. JoAnneon 03 Sep 2008 at 12:42 am

    Hi! Although we have never met in person, I have followed your amazing family with my prayers and concern since Auntie Marilyn first told me about some of the scariness of Lena and Kassie’s arrival, so very early. And from time to time, she will show me some of your progress on your website (she is VERY proud of ALL of you). I have a prayer reminder by my bedside that is a dish of different shapes and sizes of small stones, each one reminding me of someone or something special to pray for….for Lena and Kassie, there are two red glass, heart shaped stones. They remind me to thank God for the treasure you are to all those whose lives you touch (and that is so much greater because of the internet), and to continue to grant you all the courage and strength you need for each new adventure, both happy and difficult.
    This weekend I am on the way to the wedding of one of our family’s preemies. He and his twin brother were born on July 20, 1980. This week’s groom was 2lbs., 14oz., his brother who got married several years ago, and now has two beautiful sons as well, was 2lbs., 6oz. Their doctor tried to stall their arrival, as they weren’t due till Thanksgiving! He continually told their parents that they were not expected to survive….We are all so glad that doctors can be wrong sometimes, especially when it comes to HOPE, and FAITH.
    Blessings on your family.

  25. Tanyaon 14 Sep 2008 at 8:35 pm

    “So please, please, tell me who you are! Everyone! How are you connected to us? How did you find us? Why do you read? Where are you from? Are you just passing through, or have you been along for the ride? Do you plan on staying with us on our journey?”

    Hi, I found you off of Dakota’s site… I think, there are a lot of sites I read daily. I don’t have any kiddos yet, but we are becoming foster parents and willing to accept… the um, more *exciting* little ones, so I read up on all the experiences I can get. You caught my attention when I noticed Miss Lena’s eyes… they draw in a very familiar way. My girlfriend of five years has CP, as a result of her birth, a bad doctor, and the cord around her neck. She was also a micro premie. Her eyes do the same thing when she’s tired. In fact, the same eye is the “lazier” one! So, I figured I may as well read… We are from Colorado, United States.
    I don’t know if I will just pass through, or will hang on for a bit, either way, I’m sure I will stumble back on your blog someday and catch up on the girls. If and when I do come accross an entry that I think might be of special interest, or which I think that my GF may have special insite into, I’ll ask her oppinions and give her thoughts too.
    —The first of which is always to push for a wheelchair of the girls aren’t showing signs of walking. They have little guys in manual chairs as young as two or three years old and they are often seen pushing themselves (I’ve seen a little boy who could have been no more than 18 months old pushing his own chair). It gives a whole new demension to their world and drops a level of frustration as they are able to have more autonomy.
    Keep a manual chair as long as possible (if the girls are able to push them, if they can’t push themselves, then DO go for the electric as soon as you can get it). Her biggest regret is getting an electric chair, it took away the best excersize and caused her to gain a lot of weight which she cannot get off.
    Both of her parents have bad backs from carrying her everywhere until she was far too old to be lugged around like a baby. Plus, having her first chair gave her more freedom and independance than she knew was possible.

    if I haven’t written you a lengthy enought comment yet, here’s something for you to share with the girls when they are older, if you so choose:

    “My hope is to someday share your comments with Lena and Kassie”

    You are strong. Living with a different, often uncooperative, body is hard, but it is do-able. You might need help doing some things. You night need help doing a LOT of things. That’s ok. Like I wrote to your mommy above, my girlfriend has cerebral palsy too.
    The doctors told her mom that she would not live, they told her she would never talk or walk or sit up or roll over, she might never even cry. The doctors told them that she would never be able to learn anything. BOY WERE THEY WRONG!!! Mell (that’s her name) broke everyone’s expectations. She cried, she rolled over, she crawled… She got carried around a lot because they couldn’t let her crawl outside all the time. She talked… boy did she talk! And she’s considered “smarter” than most people her age! In fact, right now, she’s telling me about ‘interquartile range and standard deviation”… or something like that for her Statistics class!
    Yes, things are different. She needs a lot of help. She needs help getting dressed and putting her shoes on. She can’t drive, so she needs someone to take her where she needs to go. She needs help rolling over in bed. She even needs help sometimes getting cleaned up after going to the bathroom. But you know what? It doesn’t really matter because she doesn’t let anything stop her!
    She found me (which is not normal, but sometimes people get lucky -which is really not as egotistic as it sounds) who not only loves her but is also willing and able to help her with all the “different” things she needs help with. But even if I weren’t able to, which _is_ normal, it would still be just fine, because she would hire other people to come in and help her out; then we would be just like any other couple our age – dating, going to school, working, paying rent, and trying to start a family.
    Don’t say “I can’t”, but listen to your body. When she was little, she went barrelling down ramps and hills at full speed, she also hit rocks in her chair and got catapulted out, flew throught the air and slid on her face on the gravel playground at school. Another time, she went flying down a ramp (again at full throttle) and had her wheels pop off!!!
    When she was a teenager, Mell worked really hard to do all the “normal teenage things”… she snuck out of the house at night and went to parties, she kissed boys (and girls), she skipped school and ate way too much junk food, she did all kind of things that moms (and dads) of disabled kids think their “babies” can’t or won’t do!
    She also had therapy three hours a day, seven days a week, until she was twelve and decided she didn’t want to anymore. She regrets that decision now, because as an adult, it is much harder to get the therapy you need, and although it sucks, having it really did make her stronger and healthier and able to do more things that she wouldn’t have been able to otherwise.
    But she knew and knows when to stop and rest too. And won’t let anyone, even doctors push her beyond what is right for her body. You can always -ALWAYS- say “stop” and “no” and “this isn’t right”. Just make sure when you say it, you don’t really mean, “I don’t feel like it”. (But there are even days when it’s ok to say that!) Finally, wear your AFO’s, I know, I know, they don’t “look Cool”, I’m aware that they stick out of your socks and your dresses and skirts and make things sit funny. I even know that they pinch if they aren’t *just right*… the alternative is having your legs/bones grow funny (think foot turned sideways) and stepping/bearing weight with the sides of your foot, which HURTS. And it happens over time so that you don’t notice it but then one day, you realize that you have worn through the side of five pairs of shoes in one year and it really hurts to push weight on your feet, plus the blisters and calluses… just not fun! Of course, by that time, youve done a lot of damage and have years of work to repair it… Avoid the hassle, if you’re going out on a date, you can probably leave them home for the night, same with school pictures, as long as you are comfortable without them on, otherwise, they are (really) worth it.
    Most of all, remember that you are beautiful and strong and smart and creative and you are survivors in the most challenging of obstacles! You are able to do anything you set your mind to. Reach of the stars, let your reach exceed your grasp, and DREAM. Then make your dreams come true!

    Happy/blessed/merry/good everything!


  26. Fateha's Mommieon 03 Oct 2008 at 7:13 am

    hi korinna, my name’s Faiqah. my baby, Fateha, is now 5 months of corrected age. she was born at 26 weeks of gestation and had IVH stage 1 & 2. initially she had ROP but it has recovered. and currently having monthly physiotherapy for her Erb’s Palsy. it was caused by a traumatic Breech birth.

    let’s be friends :)

  27. Lorenon 06 Jan 2009 at 7:14 pm

    Hello! I can’t even remember how I came across your blog, but your girls are absolutely precious. I’m forever in search of micro-preemies with similar stories to my own and was thrilled to find that your girls were born on the same day as my twin boys! Max and Will were born at 25 weeks and spent 106 and 109 days in the NICU. They weighed in at 750 and 690 grams. It’s been an eventfull 2 years, but we have been blessed with relatively few medical problems, if you don’t count poor weight gain, minor lung issues, ROP, and developmental delays :). They are the happiest and sweetest boys you have ever seen.
    Thanks for sharing!

  28. Kristinon 07 Feb 2009 at 2:09 pm

    I love your website. I wish I’d found one like it when I had my 25 week 3 day twin boys in June 2003. They’re now healthy and happy kindergartners, but I would have never guessed things could turn out so well after such a difficult and scary beginning. Good luck with your girls – they’re beautiful.

    Thanks for taking the time to put the website together.


  29. Jenniferon 13 Feb 2009 at 2:20 pm

    I’m the mother of a 23 weeker. He was born at 1 pound 5 ounces and 11 and 1/2 inches. He’s currently 34 weeks 6 days adjusted age. I have been told he wasn’t going to live and a lot of the same things your daughters have been facing. It’s great you have the positive info out here, because there isn’t a whole lot of it.
    Thanks for sharing your story.

  30. Yovankaon 11 May 2009 at 8:50 am

    Hi, I found your blog through inspire.com and it gives me hope. I have twin boys born at 31 weeks 6 days. One twin is developing normally Jacob while Banjamin has been diagnosed with mild CP. They turn 2 at the end of this month and while Benji is doing well. He is yet to sit up without support and his speech is delayed. We live in New york and eventhough he get PT and OT 4 times a week our service coordinator claims she can’t find a Speech Therapist for our area I think it’s all a joke and we complain and complain and we get no where. I have to say I have been looking for hope in every story I read about children with CP trying to find a light at the end of the tunnel.

    Thanks for your blog your girls are beautiful.

  31. Auntie Pattion 10 Jul 2009 at 12:53 am

    Been thinking about you guys. My little preemie girl is all grown up and now getting married. Enjoy every moment while they are little. They grow up very fast.

  32. Lindaon 23 Sep 2009 at 10:07 am

    Hello, I found your blog when doing some research about my daughter. She was born at 29 weeks and, like you, I had no warning whatsoever about her coming early. I had a great pregnancy with no blood pressure or sugar issues until I got a tear in the water bag. It all went downhill from there.

    I completely understand your sentiment about not being able to enjoy the birth of your baby because of the troubles you know that she will go through. It is definitely a great comfort to see success stories like yours when I am still going through the NICU experience. My daughter has been in the NICU for 8 weeks and is projected to be there for 3 to 5 more weeks because of her issues with breathing and her slow progress in taking feeds by bottle.

    Thank you for posting this and keeping it available on the web. People like you give others hope even when times are very hard.

    Your daughters are beautiful and truly miracles.

  33. Melanieon 15 Oct 2009 at 8:29 am

    Hi there

    Thanks for a wonderful blog and it is amazing how good the Lord is to us all and how He looks after our precious children. I have premie twins girls born at 34 weeks, now 7months (5,8months corrected age).

  34. William Maskalon 24 Dec 2009 at 1:15 am

    Glory to God!

    Faith told me about this site.

    This site is wonderful. God is good. God takes care of His children.

    Remember that through God nothing is possible. Remember that God is always there for you. Whenever you need a prayer I know you have many close people there for you. Since Faith has told me I have started to light a candle for Lena and Kassie. They have been in my prayers.

    May God grant you and your family strength.

    with God and His Blessings,

    William Maskal

  35. Deeon 18 May 2011 at 9:56 am

    Hi Korrina,

    Did you stop submitting to the blog in 2009, or have you moved your blog somewhere else? I am always intersted as our son was born at 31 weeks and also suffered at bilateral brain bleed, level 3 and 4.


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