The Good News - Lena’s CT scan went very well today, again like the little trooper that she is, she did the whole scan completely awake. The surgeon came to see me afterward and said that it looks like the ventriculostomy is working and he is not planning on replacing her shunt. In stead he [...]

We are still waiting to recover enough from the infection to take the EVD out and go home, could be a while I’m told. We are starting to feel as if we will be stuck in this hospital forever. Our neurosurgeon returned to day and assured me that we will not be here forever only [...]

Once in the ER Lena was stabilized and a multitude of tests were preformed. The pediatrician on call suspected that  there could be a problem with her shunt however when he went to insert an IV and she was non responsive (she just looked at him and let him insert an IV into her hand, [...]

Last Monday night at about 7:30pm I called 911 to dispatch an ambulance to my house to take Lena to the Emergency Room I knew that it was not safe for me to try to take her there myself.
Since her surgery over three weeks ago my Little Lena has not been the same. We have [...]