I don’t want to jinx anything but we are finally on the home stretch. Lena had her shunt internalization surgery this morning. Everything went very well and she is recovering in our room in the Pediatric ward. Yeah no PICU this surgery. She is still needs codeine for the pain and is sleeping soundly as […]

Today it has been a whole month that Korrina and Lena have been in the hospital, living in their little *8 x 8 cell* as Korrina calls it.
Lena’s white cell count is still way too high.  The doctors are wondering if the injections of antibiotics through her drainage may be causing the white blood cell […]

“Making the decision to have a child is momentous. It is to decide forever to have your heart go walking around outside your body”
Elizabeth Stone
In Hebrew, Lena means “light.” I thought that was particularly fitting. When Lena is much older, she’ll like knowing that her name means “alluring” in Latin, but for now, I […]

Yesterday was not such a good day. I have to say I am seriously discouraged, everything was going so well and she has been herself for days.Yesterday when she woke, I expected some irritability and lethargy. After all she did have surgery last night. She usually recovers so quickly I kind of expected her to […]

Today was a fairly busy day. Lena had a CT scan this morning to make sure that her ventriculostomy is working. There was a little bit of an increase in ventricle size but the minute change can also be attributed to the infection and high protein levels so we will have another on Thursday to […]